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28 de feb. de 2024 · Join the global campaign to raise awareness and generate change for the 300 million people living with a rare disease. Find events, stories, materials and partners near you and share your colours on social media.
- About the day
Rare Disease Day is the globally-coordinated movement on...
- Events near you
The technical storage or access is strictly necessary for...
- Join
The technical storage or access is strictly necessary for...
- News
In the run up to Rare Disease Day 2023 on 31 January at 5.30...
- What is a rare disease
Rare Disease Day is a great example of how progress...
- Previous Rare Disease Days
Living with a rare disease Day-by-day, hand-in-hand....
- Downloads
I Support Rare Disease Day visual and infographic cards are...
- Our Heroes
Turning Pain Into Purpose With Rare Disease Girl. After...
- About the day
Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.
Rare Disease Day is a global initiative to raise awareness and generate support for everyone who is on a rare medical journey. It takes place on the last day of February, which this year is February 29th, the rarest day of the year.
Argentina. Argentina’s very first Rare Disease Day was in 2009. Since then, participants have been working with the media and patient organisations to increase awareness among the general public about rare diseases. Argentina held multiple events to celebrate Rare Disease Day 2020.
Día de las Enfermedades Raras - Rare Diseases International. Noticias y eventos. Calendario de eventos. Comparte tu evento. Boletín informativo del rdi. Cobertura mediática.
27 de feb. de 2018 · Rare diseases present fundamentally different challenges from those of more common diseases, especially for diagnosis. The small number of patients, the logistics involved in reaching widely dispersed patients, the lack of validated biomarkers and surrogate end-points, and the lack clinical expertise and expert centres all present ...
Rare Disease Day Tools & Resources. Help us spread the word about #RareDiseaseDay online and in person in your community using the tools below.
